If you or a loved one has been diagnosed with primary immunodeficiency (PI), you may feel overwhelmed and even isolated. The MyIgSource Patient Advocates are here to offer support, helping you feel less consumed by PI and reminding you that you're never alone on your journey.
You see, these Patient Advocates either have PI themselves or have a loved one with PI, so they know firsthand what it's like to live with and manage PI.
When you enroll in MyIgSource, you'll receive a call from a Patient Advocate who can help you get started on the program. Your Patient Advocate will also be your point of contact for everything MyIgSource.
Meet Your Patient Advocates
Dayna is the mother of four children with PI, and has been an active leader in the community for years. As a former teacher, she understands what it takes to educate and empower every member of her team. Dayna is dedicated to delivering the support and thoughtful guidance that allow MyIgSource Patient Advocates to bring that same commitment to patients, caregivers and their families.
Kristin is a mother of four grown children with PI. She has experienced both the pain of misdiagnosis of one of her children and the comfort that comes from speaking with other caregivers and patients. Kristin and her husband also have two goofy golden retrievers who keep them entertained.
For Julie, a PI diagnosis didn't mean giving up an active lifestyle. In fact, shortly after being diagnosed, she participated in her first relay event to raise awareness for PI. Now that Julie’s stepson is grown, she and her husband are looking forward to traveling the country and maybe even finding a new place to call home.
Karen was diagnosed with PI at the end of 2011, but she had been looking for an answer since 1992. As the wife of a police officer and working mother of three children in college and high school, Karen knows a thing or two about managing a chronic illness—while still dealing with everyday life. She understands that it is a difficult and sometimes overwhelming diagnosis, but has learned how to empower herself and is grateful to be in a position to help others learn to do the same.
Sue struggled with chronic infections for several decades before finally being diagnosed with PI in her late 50s. As a Patient Advocate, Sue encourages patients and caregivers to seek out the best possible care and to advocate for themselves. She also uses her teaching background to help people understand primary immunodeficiency and to develop better communication with their families, friends, and healthcare providers.
Scott is the father of two adult children and is diagnosed with PI. He and his wife love spending time with their grandchildren and enjoying the great outdoors. A proud member of the Patient Advocate team, Scott is thrilled to work alongside members of the community and to serve with passion.
Laura and her wonderful husband are parents to two active young adults. She was diagnosed with CVID in 2017, ten years after her son received the same diagnosis. Laura believes education and empowerment are the keys to helping patients successfully navigate their PI journey. When she finds the time for herself, she goes to her happy place: at the beach snorkeling.
Kris is a mother of three children with three different rare diseases. One of her daughters was diagnosed with CVID in 2012 after many years of searching for answers. Despite their health issues, her family has a very active life that includes lots of walks with the family’s bichonpoo.
Renee is a former teacher and mother of one adult child. Since 2012 when she was initially diagnosed with CVID, she and her husband have both relied on MyIgSource’s educational resources and peer-to-peer support. Renee hopes to help other families learn more about PI by sharing her own experience with a PI diagnosis in adulthood. She also strives to provide support for others who are searching for answers while coping with the uncertainty of a new diagnosis.
Having been diagnosed early in life, Austen recognizes the challenges of growing up and transitioning into adulthood with PI. He does not let PI stand in the way of his passion for golf and traveling. Newly married, Austen can often be found in the kitchen testing new recipes alongside his wife.
Lori`s husband was diagnosed with CVID in 2008. Through this experience and as a mother to two children, she recognizes how PI can affect the entire family. Her husband is a business owner who has learned to manage his PI while successfully pursuing his passions. As a proud Patient Advocate, Lori is committed to providing support and encouragement to patients — and their families.
Shawna is a mother of three adult children and grandmother to one. At only 18-months old, her daughter was diagnosed with primary immunodeficiency. This quickly taught Shawna the importance of empowering her daughter to take ownership of her health as she grew into adulthood. Shawna enjoys traveling and baking sweet treats for her family.
Xan is the mother of two adult children, but her daughter was diagnosed with PI early in life. She understands the impact PI can have on a child as well as the family, and she has a passion for helping families navigate this journey — especially as it pertains to managing education, from pre-school through college. Xan is an ardent Disney fan who just might live at Disney World if they would let her.
Talking to a Patient Advocate
Find out what to expect on your first call with a Patient Advocate.