If you or a loved one has been diagnosed with primary immunodeficiency (PI), you may feel overwhelmed and even isolated. The MyIgSource Patient Advocates are here to offer emotional support, helping you feel less consumed by PI and reminding you that you're never alone on your journey.
You see, these Patient Advocates either have PI themselves or have a loved one with PI, so they know firsthand what it's like to live with and manage PI.
When you enroll in MyIgSource, you'll receive a call from a Patient Advocate who can help you get started on the program. Your Patient Advocate will also be your point of contact for everything MyIgSource.
Meet Your Patient Advocates
Dayna is the mother of four children with PI, the Editor-in-Chief of Just Like Me series and co-creator of the Therapeutic Play Kit. Dayna created the My IgG Book for her oldest son, Charlie.
Kristin is a mother of four children with PI, who has experienced the pain of misdiagnosis of one of her children and the comfort that comes from speaking with other caregivers and patients.
Tarsha understands the value of MyIgSource firsthand. Diagnosed with Common Variable Immunodeficiency (CVID), she took advantage of the resources and tools the program offers. Tarsha looks forward to helping other patients with their journey.
For Julie, a PI diagnosis didn't mean giving up an active lifestyle. In fact, shortly after being diagnosed, she participated in her first relay event to raise awareness for PI. Julie is married with a stepson and has worked as an ultrasound technician for more than 10 years.
Karen was diagnosed with PI in 2011. As a working mother of three adolescent children and the wife of a police officer, Karen knows a thing or two about managing a chronic illness along with everyday life.
Diagnosed with PI later in life, Sue found support from an advocate at MyIgSource. As a Patient Advocate herself now, Sue looks forward to providing educational resources and support for PI patients.
Rhea, pronounced Ray, is the father of two young children, including a son who was diagnosed with Wiskott-Aldrich syndrome at 14 months. Rhea now seeks to help others on their journeys.
Scott, father of two adult children, is diagnosed with CVID. He and his wife are active in their small town community and the outdoors. Scott is thrilled to be with the Patient Advocate team and to serve with passion.
Laura is the mother of two active teenagers. Her son was diagnosed with CVID in 2007. Primary Immunodeficiency (PI) community education and support have eased their journey, and Laura is excited to help others likewise.
Kris is a mother of three children with three different rare diseases. One of her daughters was diagnosed with CVID in 2012. Despite their health issues, her family has a very active life.
As a person diagnosed with CVID in adulthood, Renee relied on MyIgSource's tools, educational resources, and support to navigate through the uncertainty of a new diagnosis. She now wants to share with others.
Talking to a Patient Advocate
Find out what to expect on your first call with a Patient Advocate.